Tuesday, January 26, 2010

Doctor appointment update

So, I saw my Oncologist today to go over the results of my PET scan and to discuss the next course of treatment. My cancer is not in remission, so this means more Chemo for me. For the next three to four months, I will continue doing the Folfox treatment minus the Oxaliplatin with the biological treatment of Erbitux. She took the Oxakiplatin out because of the Neuropathy that I have been experiencing and she said I should start to feel much better.

My cancer has not spread or reoccurred in the Colon, but I still have several tumors on the right lobe of my liver. The inside of the tumors are going through Necrosis which means the tumors are dying on the inside, but there is still activity on the outer tumors. This activity has caused my tumor markers to go up. (Both the CEA and the CA-19-9 Colon cancer tumor markers). I had my blood drawn again today for these markers and will see the doctor again on March 9. She did give me the okay to still take my two week vacation to Minnesota in Feb and to "skip" treatment during this time. The doctors office should be giving me a call within the next few days to set up my treatment dates.

I am NOT taking all this information as bad news. I am looking at it in a very positive light. A lot of my tumors are now gone. They were at one time covering my entire liver. I had very large tumors with the largest measuring 13 mm on my liver. The largest one is now 10mm and is going through Necrosis, so this is good news. The Chemo is working. I just need a little more to get the cancer to go into remission. There is also the possibility of a liver resection if the cancer does not completely go into remission after treatment. I will have another PET scan in 3-4 months to see how this treatment is affecting the tumors. My Oncologist was very positive and felt that my treatment was going well.

I have been feeling pretty great and look at this is a positive sign that things are looking up for me. I am very Thankful for each day and have truly been blessed. Thanks everyone for the continued prayers and support. :0)

Tuesday, January 19, 2010

Biological treatment day

Just thought I would do a quick post before heading off to treatment this afternoon. :o)

Things are going really well and I am happier than I have been in a long time. I don't look or feel sick. My liver twinges are dissipating which I am taking as a good sign that the tumor is shrinking. Still praying for complete remission in 2010. It really is difficult to feel like you are in limbo all the time, but I am dealing with it all one day at a time. I feel so fortunate that I am alive to breathe in each new day.

The kids are doing well. My oldest went through a pretty rough period these past couple of weeks, but I think we finally got it all sorted out. We've been talking a lot more lately about things and I think it is great that she is getting her feelings validated. My middle son is back at school since last week. He had a little bit of a break with the move and getting his bus route figured out. He is always so happy and excited to go to school. My littlest one is so happy in our new home. He went through a period where he was shrieking at the top of his lungs, but thankfully since we moved that has passed. They all are adjusting and seem a little happier.

As always, I am so appreciative of all the love, support, and prayers that are continually sent my way. I am very optimistic about what the future holds for me. I went through a period of feeling devastated, but now I feel that such good positive things are happening to me...it can only get better from here. I refuse to be yet another statistic and I have so much to live for.

I have my Oncologist appointment next week to go over my CT scan from July and my recent PET scan. The radiologist will compare the results, so that we know where we stand. At that time, she will determine if I need to continue my weekly biological treatments or if she has another treatment option. I will update my blog when I know more.

Tuesday, January 12, 2010

PET Scan results

Thanks to my mom asking the nurse after I had a meltdown, she went over my PET scan results with me. Unlike my worst fears, the cancer has not spread. The twinges that I feel in my liver are actually the cancer cells dying and the tumor shrinking. The chemo is doing it's job.

We are currently in my last cycle (Cycle 12). I will get unhooked on Thursday afternoon and I am done with Chemo. I still may have to go in for my once weekly biological treatments depending on what my Oncologist decides. I do have a treatment next Tuesday for sure.

In the mean time, I have to obtain my CT scan that was done in July from the hospital and have it sent to the Radiologist to do a comparison.

2010 really does seem like it is going to be a much better year than last year. I have the support of my wonderful friends and family. I feel really optimistic about the future now.

The kids are doing great and have adjusted to our new home well. Fortunately, they got to attend same schools. Tyler starts back on Thursday after having to get his bus route situated. He is anxious to go back and see his teacher and his friends. The boys and I get up every morning and walk Kaylie to school. It is too far for her to walk alone. Logan is thriving and is still my little "chunky monkey". He likes to say "Wow" over and over. It is so adorable. I love them all so much.

The rest of my personal life is awesome to say the least. I really am content with life and thankful that I have been so blessed.

I will update again on Thursday when I get my pump unhooked and get my shot. No serious side effects yet except for the neuropathy that started during my last cycle. This may or may not be a permanent condition. Only time will tell.

Love you all,

Saturday, January 9, 2010

It's been awhile since I updated my blog. The last few weeks have been pretty hectic. The kids and I downsized and moved to an apartment last week. We love it here and the kids are excited that there is a pool. Plus their Uncle lives in the same complex - in the next building over from us. We are still settling in and have to get our stuff from storage, but things are progressing. It is nice because we live in the same neighborhood, so the kids still attend the same schools.

I finally had my PET scan done last week, but won't discuss the results with my doctor until the 26th. I am nervous, but since I am feeling so good I feel that it can only be positive news. I asked for my last lab results last week and they couldn't find them in my patient file, so I will have to ask again this coming week. Tuesday starts my final round of chemo. It has been a long 6 months for everyone, but hopefully this will be it for awhile. If not, I am not sure what the next course of treatment will be. I know that there are lots of options available now and I will do whatever it takes.

My life is going really well and I am happier than I have ever been in my life despite the cancer. I have lots of really wonderful and supportive people in my life. A few (who should know who they are) have made my life incredible. I am forever grateful for the continued support, prayers, and love that have been sent my way. I really do believe that positive things are in store for me this year.

I will try to update from treatment on Treatment on Tuesday (hopefully before the Benedryl kicks in) on the status of my blood work and the start of my final treatment.

Lots of Love,