My son did not want to sleep last night. We are out of his medication, so I am dealing with him being super hyper and non-compliant. He ended finally passing out at 3am, so needless to say I am exhausted this morning. I had trouble getting to sleep after that and was awake until almost 5am. Hard when I have to be up at 6:30 to get my daughter ready for school. It's really difficult to deal with all of this alone and I really wish hubby were home.
Besides being overly tired and needing some coffee, Day 2 is going alright. I go in for treatment this afternoon for 2 hours and then come home with the pump again for another 22 hours. The only real side effect that I am feeling right now is the cold sensitivity.
In other good news, my CEA and CA 19-9 numbers continue to go down. Since my last blood test my CEA was more cut by more than half. They are still fairly high (I have a lot of Cancer), but they are going in the right direction and the treatment is working. I believe that all the positive thoughts and prayers for me have had a huge impact in how I am doing. I truly believe that is what is helping me to deal with everything and remain positive. Much love to all of you :0)